Registries

Hematology Registry

The Belgian Cancer Registry (www.kankerregister.org) has established a database of all cancer patients diagnosed in Belgium. However, the registration of hematological malignancies is not optimized:

  1. The classification of hematological malignancies is largely obsolete and thus the epidemiology of hematological malignancies cannot be established
  2. Many standardly recorded parameters are not appropriate for hematological malignancies and important information is missing.

The BHS has thus embarked on a collaboration with the Belgian Cancer Registry to :

  1. Re-define the classification of hematological malignancies within the Belgian Cancer Registry database, from which to study the epidemiology of hematological malignancies in Belgium;
  2. Add hematology-specific data to the database and implement them in the different hospitals. Among other things, the registry should thus facilitate the Identification of rare malignancies for translationnal research.

Hematology registry coordinator : A Sonet (anne.Sonet@sang.ucl.ac.be).

Transplant Registry

Again in collaboration with the Belgian Cancer Registry (www.kankerregister.org), and with the support of the Belgian Foundation against Cancer (www.cancer.be), the BHS is preparing the establishment of a Belgian Transplant Registry of all hematopoietic cell transplants performed in Belgium.

Transplant registry coordinator : J Maertens (Johan.Maertens@uz.kuleuven.ac.be).

Background

Objectives

Partners

Methods

Deliverables